I want to thank you for your prayers and the love you constantly pour out to our family. Our journey is not yet smoothing out, but instead getting rockier for now. Earlier this afternoon we had the visit of the Infectious Diseases doctors who brought a bad report on Jonathan’s health. The report was later confirmed and further explained to us by the Dermatology doctor who is the expert on this case. They believe that Jonathan has developed an extremely dangerous, even life threatening allergic reaction called DRESS Syndrome. This is a severe reaction to medications that involves several systems in the body. The characteristic rash with swelling and fever is just one of them. Jonathan is also showing abnormal liver function and inflammation of the lymph nodes. All consistent with DRESS. The reaction is not easy to diagnose or to treat. Especially because it’s not easy to determine what specific medication is causing it. Right now the doctor’s strongest lead is Vancomycin. The situation gets complicated because we are only in the middle of treatment for Jonathan’s osteomyelitis (bone infection). And because he is taking anticonvulsive drugs as part of his brain tumor follow up. So we can no just stop all medications to only focus on DRESS.
The treatment for this new situation is a long term use of steroids. But there is a specific way to give those to prevent further problems. So, in conclusion this is not easy, nor short term. For now, we will remain in the hospital until diagnosis and treatment are well established.
I need to confess that hearing these news just got me hard. It is very difficult to see Jonathan hurting. It is hard to grasp the gravity of this illness without feeling scared.
We need to be dependent on God. We need to keep trusting Him. His nature, His love, and His purpose don’t change. He remains being good, He still cares for us, He still wants to use our lives.
Please continue to pray. Pray for healing and patience for Jonathan. Pray for wisdom and discernment for our doctors. Pray that God will use this to shape our children’s faith. Pray for our parents and closer friends as they support us. Pray that I will be a true helper for my husband. Pray for opportunities to share the Truth to a world whose hurts without Christ are without hope. And pray for everything else that the Spirit prompts you to pray as you walk with us on this journey.